Skin Stories Series

Sarah, 52

36 years of picking · Perimenopause · Found real recovery at 48

"I didn't know the word dermatillomania until I was forty-seven. Thirty-one years of doing something every single day without knowing it had a name."

When did this start for you, and what do you remember about that time?

Sixteen. I remember it very clearly. My skin was breaking out and I was already an anxious teenager. One afternoon I locked the bathroom door and picked at a spot in a way I hadn't done before, really working at it, and it became a session. I was in there for nearly an hour. And that was that. It had started.

The 1980s were a particular context for this. Nobody talked about anything like it. There was no internet to search, no community to find, no word to look up. I thought I was uniquely disgusting. I remember thinking, very explicitly, that I was the only person in the world who did something like this. I carried that belief for decades. And it compounded everything, because when you think you're the only one, you can't seek help, you can't talk about it, you can only hide.

I hid it for thirty-six years. That is not an exaggeration.

Can you describe what a picking episode actually feels like, from the urge through to the aftermath?

After thirty-six years, I know the pattern so well I could map it in my sleep. The urge is a restlessness - a need to be doing something with my hands that is specifically this, not something else. It often comes after stress, after difficult interactions, or in the evening when the day's performance is over and there's nothing left to keep me occupied.

My picking is mainly my face and arms. The face involves a mirror. The arms are automatic - I'll be reading or watching something and my nails will be working at a patch of skin on my forearm without any decision. I've learned to notice the automatic ones much better than I used to. That awareness took years to develop.

Afterwards, for most of those thirty-six years, was shame. Specific, sharp shame, every time, even when I thought I was past caring. The shame was the thing that kept me from addressing it. If you're ashamed of something you don't talk about it. If you don't talk about it you don't get information. If you don't get information you stay in the dark for thirty-six years. That's exactly what happened.

What has been hardest to explain to people who don't have it?

At this point in my life, the hardest thing is explaining why I'm only now dealing with this properly. People want a narrative that makes sense: you had a problem, something happened, you got help, you're better now. But I had a problem for thirty-six years and did nothing about it except adapt around it, and then finally found the right information at forty-seven and started actually recovering at forty-eight. That trajectory is hard for people to understand.

They ask, not unkindly, why I didn't try to get help sooner. The answer is that I didn't know it was a thing you could get help for. I didn't know it was anything other than a personal failing. The absence of the right information for three and a half decades isn't laziness or lack of effort. It's what happens when you think you're uniquely broken. You don't go looking for a solution to a problem that only you have.

Has it changed the way you live, things you've avoided or cancelled?

Entirely. Let me try to be specific rather than just saying yes. I have spent the majority of my adult life wearing long sleeves. In summer. On holiday. I have a wardrobe full of lightweight cardigans and loose long-sleeved tops for hot weather. My husband has seen my bare arms rarely. My daughters, who are in their twenties now, have never asked directly but I think they've known something was there.

I've cancelled more things than I can accurately remember. I know I avoided a spa weekend with friends every time it was proposed, for about fifteen years, until the group stopped proposing it. I avoided swimming. I avoided photographs at certain angles. I avoided sleeveless anything.

What I find most painful now is thinking about the energy expenditure of all that avoidance, the mental accounting of what I could and couldn't do and when, the constant low-level management of a secret across decades. That energy could have gone somewhere else. It went into hiding.

Was there a moment something shifted, in how you understood it or how you approached it?

My younger daughter sent me a link. She's twenty-three and she'd been reading something about BFRBs and she texted me the article and said "Mum, this made me think of you." That was the first time anyone had connected what I did to anything external, anything named.

I sat with the link for three days before I read it. When I did, I found the word dermatillomania. I was forty-seven. Thirty-one years after I started, my daughter found the word I'd never found myself.

What followed was weeks of reading. Finding forums, finding clinical papers, finding accounts of other people that sounded exactly like mine. Finding that there was specific treatment. Finding that the shame model - trying to stop by feeling terrible about it - wasn't just unhelpful but was actively counterproductive. All of that landed in about six weeks and reorganised how I understood the past thirty-one years of my life.

What does recovery look like for you right now?

Four years into real recovery and I want to say clearly: it is real. It is possible at fifty-two after thirty-six years. I would not have believed this five years ago and I'm saying it because I think it matters for people earlier in this than me to hear.

Perimenopause has added a complicating layer. Hormonal shifts affect both skin texture and emotional regulation, and both of those matter for picking. My skin has changed - new textures, dryness in some areas and oiliness in others, new sensory triggers I hadn't had before. My emotional regulation has been more volatile. I've had to adapt strategies I built earlier in recovery to account for this new physiological context. That's been a real challenge and it's one that isn't talked about enough in the dermatillomania community.

What's working: a specific daily skin care routine that meets sensory needs in non-harmful ways. Barrier tools - gloves for high-risk windows at night. HRT which has helped stabilise some of the hormonal volatility. A therapist who knows this condition properly. And my daughter, who started this by sending me that link and who has been a thoughtful presence throughout.

I pick much less than I did. The shame aftermath is largely gone. I've worn a sleeveless dress in public. That might sound small. To me it is enormous.

What would you say to someone who has just recognised themselves in this?

Find the word and then find the community. Whatever age you are right now is the right age to do that. I found it at forty-seven and I'm not going to pretend I don't grieve the thirty-one years before that. I do. But I'm not going to spend my fifties grieving those thirty-one years either. The grief is there. I set it next to the gratitude for finding it at all and I keep moving.

Recovery is possible at any age. I need people at the beginning of this to know that. Not because recovery is easy or quick, but because when you've had something for thirty-six years you can start to believe it's just who you are, a permanent feature, an unalterable fact about yourself. It isn't. I am the evidence that it isn't.

Tell whoever sent you the link, or whoever you're afraid to tell, or whoever you've been hiding it from. The conversation will be different from what you're imagining. It almost always is. The secret is heavier than the truth. Let someone else carry some of it with you. You've carried it alone long enough.

Take the next step toward living well with your skin

Learning about your skin picking makes a real difference both on the inside and outside, with that awareness creating a ripple effect. If you're ready to explore a compassionate guide to kick-start your picking management, start here.

Name and identifying details have been changed to protect anonymity.